Go to Quiet Places

(or This is NOT a “My Therapist Has Cancer” Blog )

Whenever I get really angry or upset or sad or confused, my default mode is to go quiet, to be very silent and still.  Sometimes when this happens, my FitBit will actually register that I am “sleeping” even though I am wide awake and most likely on heightened alert.  I think I go into this state because I’m scared to move until I can regain my footing, get my bearings and figure out what is going on around me.  And only once that happens do I dare to speak into what I am experiencing and venture out from whatever place of safety I’ve retreated.

And so I think that’s what has happened with this space over the past few months.  It’s not that I’ve struggled for ideas of what I wanted or needed to write about – I’ve been wrestling with thoughts on boundaries and closure and growth, but also on what I wanted and needed this space to be.  When I started to write this, I never could have imagined that it would become a blog about having a therapist with cancer.  And I’ve felt over the past few months that this space has become more about her and less about me, and I wanted to take it back and reclaim it as my own, but was unsure of exactly how to do that.  I tried to map out a plan of the things that I still needed to say, in what order, to resolve that part of the story.  But I’m starting to realize that it will never be a fully realized and complete story.  There will always be an oozing wound, although it doesn’t bleed nearly as much as it once did.  And I’m sure it will rear its ugly head every now and again, maybe when I least expect it, and that I will just need to stop and address whatever is rising to my consciousness, even if it doesn’t fit neatly into my current trajectory.  I’m never sure where this journey will take me or the detours that will arise.  But this is my attempt to get back on the path, and continue onwards.

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Manifesto

(or Shout It From the Rooftops!)

I’ve been re-reading old writings and notes and emails, trying to retrace my path of the past few years.  I’m looking for patterns, for what has changed and what hasn’t.  I’m trying to see where I’ve moved forwards or backwards, where I’ve gone in concentric circles, where I’ve stayed in place or just gotten stuck.

In seeing a new temporary-therapist, I’ve had to recover familiar ground and revisit old injuries.  I’ve had to adjust my schedule, contort to fit into a new space, negotiate a fee.  And I’ve had to contend with a whole host of new feelings – ones of loss and rejection and minimization – that caught me off guard.

I’ve had to let this other person into a space that used to only be occupied by me and my therapist.  I’ve had to tell her about our relationship and things that worked well and things that didn’t.  I had to rehash the Impasse, which has always felt like a dark cloud that continued to lurk over me, occasionally unleashing a torrent of anger and rage when I least suspected it.

One of the ways we found our way out of that impasse (although we still sometimes go back in) was by writing a Manifesto.

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Impasse: A Tale in 3 Acts

(or When an Unstoppable Force Meets an Immovable Object)

Prologue: At the heart of every good therapeutic alliance there is an impasse – some insurmountable challenge that must be negotiated between client and therapist before the real work begins.  I know, from my own experience, that being in the depths of an impasse is intolerable.  It takes all the courage and energy you can summon to engage in the battle, to fight the good fight.  I share these stories because it helped me to know how others in my own therapeutic lineage tackled these ruptures, and because I hope my own impasse story gives others hope that there is a way through.  It’s messy and terrifying and may never be fully resolved, but it doesn’t have to spell the end.  It is, in fact, often just the beginning.

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Real

(or Questioning Everything I Once Held to Be True About the Therapeutic Alliance)

“What is REAL?” asked the Rabbit one day, when they were lying side by side near the nursery fender, before Nana came to tidy the room. “Does it mean having things that buzz inside you and a stick-out-handle?”

“Real isn’t how you are made,” said the Skin Horse. “It’s a thing that happens to you. When a child loves you for a long, long time, not just to play with, but REALLY loves you, then you become Real.”

“Does it hurt?” asked the Rabbit.

“Sometimes,” said the Skin Horse, for he was always truthful.

~ Margery Williams, The Velveteen Rabbit

There have been several occasions when I have had to remind my therapist that therapy isn’t real.  She always takes offense at my insistence that therapy is actually an alternate, concocted, manufactured universe that doesn’t even come close to approximating reality.  If all the people in my life were as compassionate and empathic and understanding and able to listen and willing to negotiate and able to engage in conflict and open to change, not to mention be completely focused on me, as my therapist is, then I wouldn’t have a need for therapy!

I know that therapy is meant to be a petri-dish, where you get to test and experiment and fail in safety with a dedicated guide and cheerleader right there by your side.  It’s a chance for a dress-rehearsal, to try things out before you have to do something out there, in the real world.  But it is an artificial construct, with carefully appointed boundaries and roles and responsibilities.  The real world doesn’t work in the same way.  I wish it did, but sadly, it doesn’t.

I also know that what my therapist is really reacting to is my suggestion that the relationship between us isn’t real.  She will counter that the relationship we have is indeed very real, and intimate and loving and supportive and everything you’d hope to find in another person you can relate to.

Sometimes in the past I had allowed myself to believe this, to be pulled into the notion that what we had between us was more than a business transaction.

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Upset

(or The Only Thing We Have to Fear is…?)

For the past few weeks, I’ve been in a state of emotional paralysis.  It started before Election Day, when the pundits and media were still re-assuring us of a Hillary victory, even though I feared, back then, that they weren’t telling us the whole truth.  I clung to the New York Times and FiveThirtyEight and Rachel Maddow.  I remember a feeling of relief well over me – relief! – that Rachel was hosting a show on the Sunday night before the election, so that we only had to get through Saturday without her calm presence and analysis and experts reassuring us that it was all going to be okay.

Since Election Day, I feel like I’ve been trapped in the opening sequence of the movie Groundhog Day.  Every morning I wake up and it’s if my mind has to re-learn the fact that we have, actually, for real, in all seriousness, elected Donald Trump to be the next President of the United States.  It’s as if my brain so completely cannot wrap itself around this fact that I have to forget it each and every night in order to go to sleep, then am forced to re-learn it every morning when I wake up and am confronted with this new reality.  It’s everywhere and can’t be avoided – social media, old-fashioned media, the distraught faces of my fellow citizens of these great Northeastern States of America.

Before the election I had several blog posts in the works.  Ideas, musings, even some sentences loosely constructed and strung together.  But those thoughts are all blocked, and I have to get my thoughts on this election out before anything else can emerge.  I’ve read and reacted to the thoughts and reflections of so many of my friends, who all make up my own “bubble” of kind, empathic, moral people.  But I wanted to leave my own thoughts here.

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In the Pursuit of Perfection

(or So What Did You Eat Today?)

We just got home from a weekend conference where we had hoped that our older son would realize that he is really not so alone in this world.  I’m not sure that this objective was met – it’s hard to get much in-depth emotional processing out of a 6-year-old.  I, however, came away with a whole host of revelations of my own.

But to get to those, I need to start at the beginning.  You see, my son was born with a very rare, very serious metabolic disorder that, if left untreated, causes irreversible damage to the central nervous system.  Or to be exact: brain damage.

It is hard to fathom that the very foods that so many of us eat, and take for granted, are toxic to the hundreds of thousands of people with inherited metabolic disorders.

To protect both his and my anonymity, I’m not going to name the specific metabolic disorder that he has.  His specific diagnosis isn’t all that pertinent, and I hope my own thoughts on this topic apply to anyone raising a special-needs child, far beyond the reaches of our very small metabolic community.

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The Guessing Game

(or Why Can’t You Just Read My Mind?)

I’ve wasted many, many therapy sessions waiting for, hoping for, my therapist to guess what I need to talk about that day, or in her words “where do you need me most?”

It can be agonizing to sit across from the person you are supposed to be able to tell anything and to still have the words catch in your throat.  I have this problem in a lot of my relationships.  Sometimes words just escape me altogether.  But more often, the words are formed in my head and I just can’t get them out.  They get stuck and I can’t seem to translate what I am thinking in my brain into actual words that can leave my lips.

So I just sit there and wait and hope that she – or anyone for that matter – will figure it out by mind-reading.

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