Upset

(or The Only Thing We Have to Fear is…?)

For the past few weeks, I’ve been in a state of emotional paralysis.  It started before Election Day, when the pundits and media were still re-assuring us of a Hillary victory, even though I feared, back then, that they weren’t telling us the whole truth.  I clung to the New York Times and FiveThirtyEight and Rachel Maddow.  I remember a feeling of relief well over me – relief! – that Rachel was hosting a show on the Sunday night before the election, so that we only had to get through Saturday without her calm presence and analysis and experts reassuring us that it was all going to be okay.

Since Election Day, I feel like I’ve been trapped in the opening sequence of the movie Groundhog Day.  Every morning I wake up and it’s if my mind has to re-learn the fact that we have, actually, for real, in all seriousness, elected Donald Trump to be the next President of the United States.  It’s as if my brain so completely cannot wrap itself around this fact that I have to forget it each and every night in order to go to sleep, then am forced to re-learn it every morning when I wake up and am confronted with this new reality.  It’s everywhere and can’t be avoided – social media, old-fashioned media, the distraught faces of my fellow citizens of these great Northeastern States of America.

Before the election I had several blog posts in the works.  Ideas, musings, even some sentences loosely constructed and strung together.  But those thoughts are all blocked, and I have to get my thoughts on this election out before anything else can emerge.  I’ve read and reacted to the thoughts and reflections of so many of my friends, who all make up my own “bubble” of kind, empathic, moral people.  But I wanted to leave my own thoughts here.

Continue reading “Upset”

In the Pursuit of Perfection

(or So What Did You Eat Today?)

We just got home from a weekend conference where we had hoped that our older son would realize that he is really not so alone in this world.  I’m not sure that this objective was met – it’s hard to get much in-depth emotional processing out of a 6-year-old.  I, however, came away with a whole host of revelations of my own.

But to get to those, I need to start at the beginning.  You see, my son was born with a very rare, very serious metabolic disorder that, if left untreated, causes irreversible damage to the central nervous system.  Or to be exact: brain damage.

It is hard to fathom that the very foods that so many of us eat, and take for granted, are toxic to the hundreds of thousands of people with inherited metabolic disorders.

To protect both his and my anonymity, I’m not going to name the specific metabolic disorder that he has.  His specific diagnosis isn’t all that pertinent, and I hope my own thoughts on this topic apply to anyone raising a special-needs child, far beyond the reaches of our very small metabolic community.

Continue reading “In the Pursuit of Perfection”

The Guessing Game

(or Why Can’t You Just Read My Mind?)

I’ve wasted many, many therapy sessions waiting for, hoping for, my therapist to guess what I need to talk about that day, or in her words “where do you need me most?”

It can be agonizing to sit across from the person you are supposed to be able to tell anything and to still have the words catch in your throat.  I have this problem in a lot of my relationships.  Sometimes words just escape me altogether.  But more often, the words are formed in my head and I just can’t get them out.  They get stuck and I can’t seem to translate what I am thinking in my brain into actual words that can leave my lips.

So I just sit there and wait and hope that she – or anyone for that matter – will figure it out by mind-reading.

Continue reading “The Guessing Game”